Relationship To Orphan Diseases
Because of definitions that include reference to treatment availability, a lack of resources, and severity of the disease, some people prefer the term orphan disease and use it as a synonym for rare disease. The orphan drug movement began in the United States.
Others distinguish between the two terms. For example, the European Organization for Rare Diseases (EURORDIS) lumps both rare diseases and neglected diseases into a larger category of orphan diseases.
The United States' Orphan Drug Act includes both rare diseases and any non-rare diseases "for which there is no reasonable expectation that the cost of developing and making available in the United States a drug for such disease or condition will recovered from sales in the United States of such drug" as orphan diseases.
Read more about this topic: Rare Disease
Famous quotes containing the words relationship, orphan and/or diseases:
“The relationship between mother and professional has not been a partnership in which both work together on behalf of the child, in which the expert helps the mother achieve her own goals for her child. Instead, professionals often behave as if they alone are advocates for the child; as if they are the guardians of the child’s needs; as if the mother left to her own devices will surely damage the child and only the professional can rescue him.”
—Elaine Heffner (20th century)
“For the LORD your God is God of gods and Lord of lords, the great God, mighty and awesome, who is not partial and takes no bribe, who executes justice for the orphan and the widow, and who loves the strangers, providing them food and clothing.”
—Bible: Hebrew, Deuteronomy 10:17,18.
“The fantasies inspired by TB in the last century, by cancer now, are responses to a disease thought to be intractable and capricious—that is, a disease not understood—in an era in which medicine’s central premise is that all diseases can be cured.”
—Susan Sontag (b. 1933)