JDRF (formerly Known As The Juvenile Diabetes Research Foundation) - Support and Resources

Support and Resources

Outreach Resources

JDRF offers patients with type 1 diabetes and their families various outreach resources in the form of interactive online toolkits, as well as mail-order informational packets and kits.

• Online Diabetes Support Team– An online resource in which JDRF volunteers are available via the JDRF website to talk one-on-one about T1D. People with questions or looking for support fill out an online questionnaire and are contacted by a volunteer within 48 hours. Volunteers answer general inquiries about T1D resources but cannot dispense medical advice.

• Bag of Hope - A backpack filled with educational information about type 1 diabetes for newly diagnosed children and their caregivers. The kit includes a teddy bear called Rufus – the bear with Diabetes. The kit also comes with various multimedia materials and tools including: Rufus Comes Home book, A First Book for Understanding Diabetes, other reference books, a DVD, and an Accu-Check Aviva Compact Blood Meter. Families can request a meeting with a JDRF volunteer in their area in order to receive the Bag of Hope and connect with other families of newly diagnosed children with type 1.

• Adult Type 1 Toolkit – a manual (including an interactive online component) that includes discussion forums and personalized information for the various stages of adult life with type 1 diabetes. Sample topics in the toolkit include: day-to-day management; social and lifestyle issues; relationships; diet and exercise.

• Adult Type 1 Toolkit - Newly Diagnosed - a special version of the Adult Type 1 Toolkit for those diagnosed during adulthood.

• Health Care Providers Toolkit – a manual for physicians, nurses, and other health care providers with information about T1D and JDRF research, health insurance, current technologies for diabetes treatment, and links to JDRF and external resources.

• School Advisory Toolkit – a manual to be used by parents, school administrators and students with T1D. Contains practical information on everyday medical needs (such as symptoms of high and low blood sugar), real-life scenarios to help parents obtain a better understanding of schools' legitimate concerns and needs when a student has type 1 diabetes, and tear-out sheets and sample tools for the classroom.

• Mentor program – a program that trains local volunteers to provide guidance and support to families with a new diagnosis of T1D and engage newly diagnosed families with JDRF.

Social Networking

JDRF maintains TypeOneNation.org, its own online community for people touched by type 1 diabetes. TypeOneNation.org launched on World Diabetes Day (November 14th), 2008, under its original name, Juvenation, and transitioned to the TypeOneNation.org re-brand on World Diabetes Day 2012. The re-brand reflects that type 1 diabetes is a disease of adults as well as children. It currently has more than 20,000 active members. Site features include message boards, blogs, a video library, and educational resources about life with type 1 diabetes. TypeOneNation.org is funded by an unrestricted educational grant from Novo Nordisk through its Changing Diabetes leadership initiative.

JDRF also maintains an active presence on Facebook and Twitter.

Programs funded

  • The Environmental Determinants of Diabetes in the Young

Read more about this topic:  JDRF (formerly Known As The Juvenile Diabetes Research Foundation)

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