Support
The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases.
Genetic Alliance, established in 1986, lists information and support groups for approximately 1200 rare diseases.
The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. (R.A.R.E stands for Rare disease, Advocacy, Research and Education). Global Genes promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations. Global Genes uses a simple concept of "genes and jeans" to broadly promote the needs of the rare and genetic disease community. The organization has launched a number of innovative rare and genetic disease awareness campaigns including, Hope, It's In Our Genes™, Wear That You Care™, 7,000 Bracelets for Hope™ to represent the 7,000 different rare diseases and Unite 1 Million For RARE™ disease.
The Canadian Organization for Rare Disorders (CORD) is the national network of organizations who represent people affected by rare disorders within Canada. CORD's intention is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
Patients with rare diseases in Greece are represented by the Greek Alliance of Rare Diseases.
Read more about this topic: Office Of Rare Diseases
Famous quotes containing the word support:
“Surely, ‘tis one step towards acting well, to think worthily of our nature; and as in common life, the way to make a man honest, is, to suppose him so ... so here, to set some value upon ourselves, enables us to support the character ... of generosity and virtue.”
—Laurence Sterne (1713–1768)
“Never support two weaknesses at the same time. It’s your combination sinners—your lecherous liars and your miserly drunkards—who dishonor the vices and bring them into bad repute.”
—Thornton Wilder (1897–1975)
“Three factors—the belief that child care is female work, the failure of ex-husbands to support their children, and higher male wages at work—have taken the economic rug from under that half of married women who divorce.”
—Arlie Hochschild (20th century)