Support
The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases.
Genetic Alliance, established in 1986, lists information and support groups for approximately 1200 rare diseases.
The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. (R.A.R.E stands for Rare disease, Advocacy, Research and Education). Global Genes promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations. Global Genes uses a simple concept of "genes and jeans" to broadly promote the needs of the rare and genetic disease community. The organization has launched a number of innovative rare and genetic disease awareness campaigns including, Hope, It's In Our Genes™, Wear That You Care™, 7,000 Bracelets for Hope™ to represent the 7,000 different rare diseases and Unite 1 Million For RARE™ disease.
The Canadian Organization for Rare Disorders (CORD) is the national network of organizations who represent people affected by rare disorders within Canada. CORD's intention is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
Patients with Rare Diseases in Greece are represented by the Greek Alliance of Rare Diseases.
Read more about this topic: Rare Disease
Famous quotes containing the word support:
“... the outcome of the Clarence Thomas hearings and his subsequent appointment to the Supreme Court shows how misguided, narrow notions of racial solidarity that suppress dissent and critique can lead black folks to support individuals who will not protect their rights.”
—bell hooks (b. c. 1955)
“I concluded that I was skilled, however poorly, at only one thing: marriage. And so I set about the business of selling myself and two children to some unsuspecting man who might think me a desirable second-hand mate, a man of good means and disposition willing to support another man’s children in some semblance of the style to which they were accustomed. My heart was not in the chase, but I was tired and there was no alternative. I could not afford freedom.”
—Barbara Howar (b. 1934)
“I support all people on earth
who have bodies like and unlike my body,
skins and moles and old scars,
secret and public hair,
crooked toes. I support
those who have done nothing large.”
—Naomi Shihab Nye (b. 1952)