Support
The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases.
Genetic Alliance, established in 1986, lists information and support groups for approximately 1200 rare diseases.
The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. (R.A.R.E stands for Rare disease, Advocacy, Research and Education). Global Genes promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations. Global Genes uses a simple concept of "genes and jeans" to broadly promote the needs of the rare and genetic disease community. The organization has launched a number of innovative rare and genetic disease awareness campaigns including, Hope, It's In Our Genes™, Wear That You Care™, 7,000 Bracelets for Hope™ to represent the 7,000 different rare diseases and Unite 1 Million For RARE™ disease.
The Canadian Organization for Rare Disorders (CORD) is the national network of organizations who represent people affected by rare disorders within Canada. CORD's intention is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
Patients with Rare Diseases in Greece are represented by the Greek Alliance of Rare Diseases.
Read more about this topic: Rare Disease
Famous quotes containing the word support:
“No one—man or woman—can have it all without support from the workplace and genuine help at home. Women, regardless of how they have chosen to lead their lives, can now breathe a collective sigh of relief that superwoman is dead.”
—Deborah J. Swiss (20th century)
“There is much to support the view that it is clothes that wear us, and not we, them; we may make them take the mould of arm or breast, but they mould our hearts, our brains, our tongues to their liking.”
—Virginia Woolf (1882–1941)
“There are so many intellectual and moral angels battling for rationalism, good citizenship, and pure spirituality; so many and such eminent ones, so very vocal and authoritative! The poor devil in man needs all the support and advocacy he can get. The artist is his natural champion. When an artist deserts to the side of the angels, it is the most odious of treasons.”
—Aldous Huxley (1894–1963)