Resources For Patients
There are a number of patient advocacy groups for NBIA. There are well established groups in USA, Germany and Italy. There are also developing groups in UK, France and Spain. If your family member is affected you should make contact with one of the following sites for further help and information
http://www.hoffnungsbaum.de/ http://www.nbia.co.uk/ http://www.nbiadisorders.org/ Asociación española
Read more about this topic: Pantothenate Kinase-associated Neurodegeneration
Famous quotes containing the words resources and/or patients:
“We live in a time which has created the art of the absurd. It is our art. It contains happenings, Pop art, camp, a theater of the absurd.... Do we have the art because the absurd is the patina of waste...? Or are we face to face with a desperate or most rational effort from the deepest resources of the unconscious of us all to rescue civilization from the pit and plague of its bedding?”
—Norman Mailer (b. 1923)
“The doctor should be opaque to his patients and, like a mirror, should show them nothing but what is shown to him.”
—Sigmund Freud (1856–1939)