Resources For Patients
There are a number of patient advocacy groups for NBIA. There are well established groups in USA, Germany and Italy. There are also developing groups in UK, France and Spain. If your family member is affected you should make contact with one of the following sites for further help and information
http://www.hoffnungsbaum.de/ http://www.nbia.co.uk/ http://www.nbiadisorders.org/ Asociación española
Read more about this topic: Pantothenate Kinase-associated Neurodegeneration
Famous quotes containing the words resources and/or patients:
“I always put these pert jackanapeses out of countenance by looking extremely grave when they expect that I should laugh at their pleasantries; and by saying Well, and so?—as if they had not done, and that the sting were still to come. This disconcerts them, as they have no resources in themselves, and have but one set of jokes to live upon.”
—Philip Dormer Stanhope, 4th Earl Chesterfield (1694–1773)
“The doctor should be opaque to his patients and, like a mirror, should show them nothing but what is shown to him.”
—Sigmund Freud (1856–1939)