Resources For Patients
There are a number of patient advocacy groups for NBIA. There are well established groups in USA, Germany and Italy. There are also developing groups in UK, France and Spain. If your family member is affected you should make contact with one of the following sites for further help and information
http://www.hoffnungsbaum.de/ http://www.nbia.co.uk/ http://www.nbiadisorders.org/ Asociación española
Read more about this topic: Pantothenate Kinase-associated Neurodegeneration
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