Orphan Patient - Contributing Factors

Contributing Factors

There are multiple factors that are contributing to the orphan patient problem in North America. Some of them include:

  • problems maintaining a supply of qualified health practitioners
  • providing access to them where and when they are needed most
  • a growing population of patients
  • an aging population of patients
  • a sicker population of patients (particularly with diabetes and obesity being rampant in North America)
  • a more "medicalized" population of patients (expectations for medical care are higher than ever, and we have more defined diseases to treat)
  • increasing complexity of treatments for the diseases we have always known about (standard-of-care treatment for heart attack is much more labour-intensive now than it was even a decade ago)

The orphan patient problem has only been recognized in the media recently.

Older medical references mention the term 'orphan patient' using a different definition, specifically patients with an orphan disease. For example, New England Journal of Medicine mentioned patients with orphan diseases as orphan patients in 1988:

N Engl J Med. 1988 Mar 10;318(10):646. The orphan patient. Shelley WB, Shelley ED. Publication Types: Letter PMID 3344016

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