List of Cystic Fibrosis Organizations - International

International

  • Cystic Fibrosis Worldwide (CFW), an international network concentrated on increasing quality of life and life expectancy for people with cystic fibrosis
  • CysticFibrosis.com, an internet information hub with support forums
  • CysticLife.org, (CL) A positive social network for the CF community where members can post blogs, ask questions, maintain a profile, contact others and search members by age, location, sex and relation to CF. It is created by the CF community for the CF community.
  • Sharktank.org, An internet group composed of mostly patients and parents. Research and education are the main focus with the objective that knowledge of the disease will allow better decision making and improve overall health.

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