International Declaration On Human Genetic Data
In 2003, the IBC issued a second global instrument, the International Declaration on Human Genetic Data, which may be regarded as an extension of the 1997 Declaration. This document sets out a number of rules for the collection, use and storage of human genetic data. It covers, among other issues, informed consent in genetics; confidentiality of genetic data; genetic discrimination; anonymization of personal genetic information; population-based genetic studies; the right not to know one’s genetic make up; genetic counselling; international solidarity in genetic research, and benefit sharing.
Read more about this topic: International Bioethics Committee
Famous quotes containing the words declaration, human, genetic and/or data:
“The principle of all sovereignty resides essentially in the nation.”
—French National Assembly. Declaration of the Rights of Man (Sept. 1791)
“This biplane is the shape of human flight.
Its name might better be First Motor Kite.”
—Robert Frost (1874–1963)
“We cannot think of a legitimate argument why ... whites and blacks need be affected by the knowledge that an aggregate difference in measured intelligence is genetic instead of environmental.... Given a chance, each clan ... will encounter the world with confidence in its own worth and, most importantly, will be unconcerned about comparing its accomplishments line-by-line with those of any other clan. This is wise ethnocentricism.”
—Richard Herrnstein (1930–1994)
“To write it, it took three months; to conceive it three minutes; to collect the data in it—all my life.”
—F. Scott Fitzgerald (1896–1940)