Informed Consent
One of the most important tenets of the HGDP debate has been the social and ethical implications for indigenous populations, specifically the methods and ethics of informed consent. Some questions include: How would consent be obtained? Would individuals or groups fully understand the project's intentions, particularly with regards to language barriers and differing cultural views? What is 'informed' in a cross-cultural context? Who would be authorized to actually give consent? How would individuals know what happened to their DNA? For how long would their information be kept in DNA databases? These questions are specifically addressed by the HGDP's "Model Ethical Protocol for Collecting DNA Samples".
Read more about this topic: Human Genome Diversity Project
Famous quotes containing the words informed and/or consent:
“Camped on a tropic riverside,
One day he missed his loving bride.
She had, the guide informed him later,
Been eaten by an alligator.
Professor Twist could not but smile.
“You mean,” he said, “a crocodile.””
—Ogden Nash (1902–1971)
“What we seek is the reign of law, based upon the consent of the governed and sustained by the organized opinion of mankind.”
—Woodrow Wilson (1856–1924)