Treatment
Treatment is palliative, not curative.
There was an initial study done at the National Human Genome Research Institute in Bethesda, MD testing the efficacy of administering sialic acid to patients with HIBM. Because the study cohort was so small, no significant results were determined. Anecdotal reports by patients suggested limb muscle strength was improved. Further, patients with HIBM have reported taking sialic acid on their own. A number of labs are studying sialic acid and its derivatives as a potential therapeutic for HIBM.
Read more about this topic: Hereditary Inclusion Body Myopathy
Famous quotes containing the word treatment:
“Our treatment of both older people and children reflects the value we place on independence and autonomy. We do our best to make our children independent from birth. We leave them all alone in rooms with the lights out and tell them, “Go to sleep by yourselves.” And the old people we respect most are the ones who will fight for their independence, who would sooner starve to death than ask for help.”
—Margaret Mead (1901–1978)
“Narcissist: psychoanalytic term for the person who loves himself more than his analyst; considered to be the manifestation of a dire mental disease whose successful treatment depends on the patient learning to love the analyst more and himself less.”
—Thomas Szasz (b. 1920)
“Ambivalence reaches the level of schizophrenia in our treatment of violence among the young. Parents do not encourage violence, but neither do they take up arms against the industries which encourage it. Parents hide their eyes from the books and comics, slasher films, videos and lyrics which form the texture of an adolescent culture. While all successful societies have inhibited instinct, ours encourages it. Or at least we profess ourselves powerless to interfere with it.”
—C. John Sommerville (20th century)