Hereditary Inclusion Body Myopathy - Treatment

Treatment

Treatment is palliative, not curative.

There was an initial study done at the National Human Genome Research Institute in Bethesda, MD testing the efficacy of administering sialic acid to patients with HIBM. Because the study cohort was so small, no significant results were determined. Anecdotal reports by patients suggested limb muscle strength was improved. Further, patients with HIBM have reported taking sialic acid on their own. A number of labs are studying sialic acid and its derivatives as a potential therapeutic for HIBM.

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