Clinics and Support
For those families seeking more information and support, a list of A-T advocacy organizations from around the world can be found at the A-T Children’s Project website at http://atcp.org/AdvocacyOrgs.
Also, the US, UK, Australia, Israel and Japan have specialized clinics for patients with A-T. These clinics house multidisciplinary medical teams, including neurologists, immunologists, pulmonologists and therapists, capable of dealing with the many facets of this disease. For more information about a clinic, please contact the A-T advocacy organization for that country.
Read more about this topic: Ataxia Telangiectasia
Famous quotes containing the word support:
“American families, however, without exception, experience a double message in our society, one that claims a commitment to families and stresses the importance of raising bright, stable, productive citizens, yet remains so bound by an ideal of “rugged individualism” that parents receive little support in their task from the public or private sectors.”
—Bernice Weissbourd (20th century)