Clinics and Support
For those families seeking more information and support, a list of A-T advocacy organizations from around the world can be found at the A-T Children’s Project website at http://atcp.org/AdvocacyOrgs.
Also, the US, UK, Australia, Israel and Japan have specialized clinics for patients with A-T. These clinics house multidisciplinary medical teams, including neurologists, immunologists, pulmonologists and therapists, capable of dealing with the many facets of this disease. For more information about a clinic, please contact the A-T advocacy organization for that country.
Read more about this topic: Ataxia Telangiectasia
Famous quotes containing the word support:
“Because the young child feels with such intensity, he experiences sorrows that seem inconsolable and losses that feel unbearable. A precious toy gets broken or a good-bye cannot be endured. When this happens, words like “sad” or “disappointed” seem a travesty because they cannot possibly capture the enormity of the child’s loss. He needs a loving adult presence to support him in his pain but he does not want to be talked out of it.”
—Alicia F. Lieberman (20th century)