Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“complaint of present days
Is not the certain path to future praise.”
—George Gordon Noel Byron (1788–1824)
“It is a time when one’s spirit is subdued and sad, one knows not why; when the past seems a storm-swept desolation, life a vanity and a burden, and the future but a way to death.”
—Mark Twain [Samuel Langhorne Clemens] (1835–1910)
“If nations always moved from one set of furnished rooms to another—and always into a better set—things might be easier, but the trouble is that there is no one to prepare the new rooms. The future is worse than the ocean—there is nothing there. It will be what men and circumstances make it.”
—Alexander Herzen (1812–1870)