Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“To believe in something not yet proved and to underwrite it with our lives: it is the only way we can leave the future open. Man, surrounded by facts, permitting himself no surmise, no intuitive flash, no great hypothesis, no risk, is in a locked cell. Ignorance cannot seal the mind and imagination more surely.”
—Lillian Smith (1897–1966)
“It is marvelous indeed to watch on television the rings of Saturn close; and to speculate on what we may yet find at galaxy’s edge. But in the process, we have lost the human element; not to mention the high hope of those quaint days when flight would create “one world.” Instead of one world, we have “star wars,” and a future in which dumb dented human toys will drift mindlessly about the cosmos long after our small planet’s dead.”
—Gore Vidal (b. 1925)
“Every member of the family of the future will be a producer of some kind and in some degree. The only one who will have the right of exemption will be the mother ...”
—Ruth C. D. Havens, U.S. suffragist. As quoted in History of Woman Suffrage, vol. 4, ch. 13, by Susan B. Anthony and Ida Husted Harper (1902)