Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“What a prodigious growth this English race, especially the American branch of it, is having! How soon will it subdue and occupy all the wild parts of this continent and of the islands adjacent. No prophecy, however seemingly extravagant, as to future achievements in this way [is] likely to equal the reality.”
—Rutherford Birchard Hayes (1822–1893)
“One day my mother called me ... and she said, “Forty-nine million Americans saw you on television tonight. One of them is the father of my future grandchild, but he’s never going to call you because you wore your glasses.””
—Lesley Stahl (b. 1941)
“I would sell my life to avoid
the pain that begins in the crib
with its bars or perhaps
with your first breath
when the planets drill
your future into you....”
—Anne Sexton (1928–1974)