Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“Today democracy, liberty, and equality are words to fool the people. No nation can progress with such ideas. They stand in the way of action. Therefore we frankly abolish them. In the future each man will serve the interest of the state with absolute obedience. Let him who refuses beware.”
—Charlie Chaplin (1889–1977)
“Our Last Will and Testament, providing for the only future of which we can be reasonably certain, namely our own death, shows that the Will’s need to will is no less strong than Reason’s need to think; in both instances the mind transcends its own natural limitations, either by asking unanswerable questions or by projecting itself into a future which, for the willing subject, will never be.”
—Hannah Arendt (1906–1975)
“Higher than the question of our duration is the question of our deserving. Immortality will come to such as are fit for it, and he would be a great soul in future must be a great soul now.”
—Ralph Waldo Emerson (1803–1882)