Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“If ever the search for a tranquil belief should end,
The future might stop emerging out of the past,
Out of what is full of us; yet the search
And the future emerging out of us seem to be one.”
—Wallace Stevens (18791955)
“The future is ever a misted landscape, no man foreknows it, but at
cyclical turns
There is a change felt in the rhythm of events:”
—Robinson Jeffers (18871962)
“The primary function of myth is to validate an existing social order. Myth enshrines conservative social values, raising tradition on a pedestal. It expresses and confirms, rather than explains or questions, the sources of cultural attitudes and values.... Because myth anchors the present in the past it is a sociological charter for a future society which is an exact replica of the present one.”
—Ann Oakley (b. 1944)