Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“If nations always moved from one set of furnished rooms to another—and always into a better set—things might be easier, but the trouble is that there is no one to prepare the new rooms. The future is worse than the ocean—there is nothing there. It will be what men and circumstances make it.”
—Alexander Herzen (1812–1870)
“Autonomy means women defining themselves and the values by which they will live, and beginning to think of institutional arrangements which will order their environment in line with their needs.... Autonomy means moving out from a world in which one is born to marginality, to a past without meaning, and a future determined by others—into a world in which one acts and chooses, aware of a meaningful past and free to shape one’s future.”
—Gerda Lerner (b. 1920)
“I don’t see much future for the Americans.... Everything about the behavior of American society reveals that it’s half Judaized, and the other half negrified. How can one expect a State like that to hold together?”
—Adolf Hitler (1889–1945)