Future
In January 2001, researchers at Fordham University and Massachusetts General Hospital simultaneously reported finding the genetic mutation that causes FD, a discovery that opens the door to many diagnostic and treatment possibilities.
Despite that it probably would not happen in the near future, some expect that stem-cell therapy will result. Eventually, treatment could be given in utero.
While that may be years ahead, genetic screening became available around April 2001, enabling Ashkenazi Jews to find out if they are carriers. Screening organization Dor Yeshorim offers testing as part of its panel, which also includes Tay-Sachs disease and cystic fibrosis.
In the meantime more research into treatments are being funded by the foundations that exist. These foundations are organized and run by parents of those with FD. There is no governmental support beyond recognizing those diagnosed with FD as eligible for certain programs.
Read more about this topic: Familial Dysautonomia
Famous quotes containing the word future:
“Where have those flowers and butterflies all gone
That science may have staked the future on?
He seems to say the reason why so much
Should come to nothing must be fairly faced.....”
—Robert Frost (1874–1963)
“We simply must have faith in each other, faith in our ability to govern ourselves, and faith in the future of this Nation. Restoring that faith and that confidence to America is now the most important task we face.”
—Jimmy Carter (James Earl Carter, Jr.)
“Whoever influences the child’s life ought to try to give him a positive view of himself and of his world. The child’s future happiness and his ability to cope with life and relate to others will depend on it.”
—Bruno Bettelheim (20th century)