History
PEPD was originally described by Hayden and Grossman in 1959. At that time it was not given a specific name. A later report, by Dugan in 1972, labeled this disorder as familial rectal pain syndrome. This name was used for 33 years, until a consortium of patients and clinicians was formed in the hopes of discovering the genetic cause of PEPD. During this process a number of patients expressed dissatisfaction with the name and after considerable discussion between patients and clinicians the name paroxysmal extreme pain disorder was agreed upon in 2005.
Read more about this topic: Paroxysmal Extreme Pain Disorder
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