Niemann-Pick Disease, Type C - External Links

External Links

  • Ara Parseghian Medical Research Foundation is a major funder of Niemann-Pick Type C Disease research
  • National Niemann–Pick Disease Foundation; A family support, research and patient advocacy group for families with loved ones diagnosed with Niemann–Pick Disease.
  • GeneReviews/NCBI/NIH/UW entry on Niemann–Pick Disease type C
  • OMIM entries on Niemann–Pick type C
  • National Institutes of Health Clinical Center Study On Niemann–Pick type C
  • Marc C. Patterson, MD, child neurologist, Mayo Clinic
  • Coriell Institute: Biobank that stores Niemann–Pick type C cells for research
  • Addi and Cassi Hempel: Identical twins living with Niemann–Pick type C disease
  • Testing labs for Niemann–Pick type C
  • Clinical Description of Niemann–Pick type C
  • Dana's Angels Research Trust...aiming to cure NPC
  • Hide & Seek Foundation for Lysosomal Disease Research
  • Global Genes Project, Rare Disease Support Organization
  • Detailed information about Niemann–Pick type C for patients and Healthcare Professionals incl. Glossary
  • Portuguese description of Niemann–Pick type C, support and resources

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