Nemaline Community
In 1999, the first non-medical webpage on nemaline myopathy was launched, and in October 2004, the first Nemaline Myopathy Convention was held in Toronto, Canada. A second convention took place in the summer of 2007 in Edinburgh, Scotland. In March 2006, Niki Shisler released a book, Fragile, in which she recounted her experiences surrounding the birth of twin sons with severe NM.
Read more about this topic: Nemaline Myopathy
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“The community has no bribe that will tempt a wise man.”
—Henry David Thoreau (1817–1862)