Informed Consent
One of the most important tenets of the HGDP debate has been the social and ethical implications for indigenous populations, specifically the methods and ethics of informed consent. Some questions include: How would consent be obtained? Would individuals or groups fully understand the project's intentions, particularly with regards to language barriers and differing cultural views? What is 'informed' in a cross-cultural context? Who would be authorized to actually give consent? How would individuals know what happened to their DNA? For how long would their information be kept in DNA databases? These questions are specifically addressed by the HGDP's "Model Ethical Protocol for Collecting DNA Samples".
Read more about this topic: Human Genome Diversity Project
Famous quotes containing the words informed and/or consent:
“If people are informed they will do the right thing. It’s when they are not informed that they become hostages to prejudice.”
—Charlayne Hunter-Gault (b. 1942)
“The rule for every man is, not to depend on the education which other men have prepared for him,—not even to consent to it; but to strive to see things as they are, and to be himself as he is. Defeat lies in self-surrender.”
—Woodrow Wilson (1856–1924)