The Twins' Lives
The twins both require the use of a wheelchair and are unable to speak, although they both recently acquired electronic speaking aids. They are also subject to persistent and painful muscle spasms which they say are worsened by emotion. It is believed that both will die in their late teens and are using the services of a hospice, though they still live at home with their parents. They are constantly undergoing more tests and studies in an attempt to discover more about the disease and trying to find a cure. Doctors think that over time, there could be more people who are born with Fields Condition, but for now they are simply trying to learn more about it, so that if it becomes more widespread, they will have a head start on it.
Read more about this topic: Fields' Disease
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“Its imaginary value will increase with the years, and if he [his grandson-in-law] lives to my age, or another half century, he may see it carried in the procession of our nation’s birthday, as the relics of the saints are in those of the church.”
—Thomas Jefferson (1743–1826)