Congenital Insensitivity To Pain With Anhidrosis - Incidence

Incidence

CIPA is extremely rare. There are 84 documented living cases in the United States; there are more than 300 in Japan. Only one case is documented in New Zealand, while two cases have been documented in Morocco. Sixty cases had been reported worldwide by 1983, when CIPA was first listed as a disorder.

Most infants afflicted with the disorder do not live past 3 years of age, and those who do rarely pass age 25. The reason for the short life span is often related to the sufferer's inability to sweat, which leads to hyperthermia, to which infants are especially susceptible. Vital signs need to be monitored closely since patients are generally unable to feel when something is wrong.

Two boys from Ecuador having CIPA cases treated by Dr. Felicia Axelrod since 1976, see article about. Also, Dr. Yasuhiro Indo, Kumamoto University, School of Medicine, Japan.

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