Chronic Fatigue Syndrome Advisory Committee - Recommendations

Recommendations

In 2010 the committee advised HHS that the name chronic fatigue syndrome (CFS) should be changed to CFS-ME because the name wasn't being taken seriously. ME stands for myalgic encephalomyelitis or myalgic encephalopathy, according to the panel. One member stated that a more serious sounding name might encourage more research into the illness. The CFSAC panel also recommended that national CFS-ME network of treatment centers be created by HHS, "in order to expand access to care, to develop educational initiatives, and to allow researchers to share data."


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