CHARGE Syndrome - Transitioning Into Adulthood

Transitioning Into Adulthood

Parents should make sure that before their child reaches age 18 (or the age of majority in their country), they have established which doctors and specialists will follow the individual with CHARGE syndrome in adulthood. Even if the young adult with CHARGE is independent, it’s important to help them maintain their independence by helping them move from the pediatric doctors to the new doctors who will follow them as adults.

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Famous quotes containing the word adulthood:

    “One of the most highly valued functions of used parents these days is to be the villains of their children’s lives, the people the child blames for any shortcomings or disappointments. But if your identity comes from your parents’ failings, then you remain forever a member of the child generation, stuck and unable to move on to an adulthood in which you identify yourself in terms of what you do, not what has been done to you.”
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