Ben Bowen - Bowen's Life

Bowen's Life

Ben Bowen was born to Tom and Jennifer Bowen on November 14, 2002. Ben had a normal infancy until age 16 months, when he was diagnosed with a golf-ball–sized tumor in the middle of his brain. Ben Bowen went to Cincinnati Children's Hospital for emergency brain surgery. The tumor proved to be a very aggressive, rare, and fast-growing atypical teratoid rhabdoid tumor (AT/RT). The Bowens transferred to St. Jude Children's Research Hospital in March 2004.

Ben's initial treatments included four brain surgeries and chemotherapy; he was too young for radiation therapy. During this treatment period, Ben Bowen picked up the nickname "Big Ben" because of his "big" demeanor, bravery and smile. The tumor reoccurred by November 2004, and no known medicines or treatments were left to help him.

With assistance from Federal Express, and the family of a victim in the September 11 attacks (whom Tom assisted in the recovery of), the Bowen family took Ben Bowen on a special two-week trip to Disney World, where they celebrated his second birthday.

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